This is a cause that's close to my heart. Anyone with a special needs child understand what I go through daily. My son has Spina Bifida, club foot and hydrocephalus (water on the brain) for which he has a shunt in the head to relieve the pressure and leg braces. when I found out that the baby I was carrying had a neural tube defect I had no idea what the meant or what to expect. My worst nightmare came true, his clinical diagnosis is Spina Bifida with hydrocephalus. Which means his spine did not form correctly so his lower body does not work right either. His legs are twisted, plus needs medicine (which I have to pay out of pocket for) to release urine and bowels. Plus the hydrocephalus means water on the brain and one of his many surgeries put a shunt on his brain to help his body release the pressure of water on the brain. His eating habits are not that of a kid his age, he has a very strict diet, and it takes him way longer to finish his food.
He will be in diapers (which I have to pay out of pocket) for the rest of his life and I have to catheterize him every couple of hours. Which why I can not work since daycare's do not want to take the responsibility of doing medical treatments. He has had so many surgeries and I am so proud of him for pulling through them all and being so strong. Now has come the time for the next phase in his life, independence. This means he needs a lot of adaptive equipment needed to help him get around the house and do personal care tasks that I've been doing . Between going to all of the different types of therapy appointments, doctor appointments and surgeons appointment I don't have time for much else. Everything has one thing in common, they all want money which is something that I have less and less of as the time goes by. Any donation will be appreciated no matter how little or big.
Some of the thing that the monies will be used for are the following;
customized wheelchair $8,000
Power lift for the car $3,500 plus installation $400
Bath lift $1,500
Ramp $500
Powered Bed $3,500
Medications ($200 monthly), diapers ($800 monthly), Bed under pads ($500) other incontinence supplies plus personal care items $2800 monthly
Bathroom Safety Aid equipment - bath chair $800, Grab Bars
Special Needs Child Restraint system $800
Standard $1200
Total expense that need to be covered $24,000
https://www.facebook.com/donate/502063180298995/
or go here either one https://www.gofundme.com/funds-for-severely-disabled-child-equipment-needs&rcid=r01-154497818273-149c7751e89d414c&pc=ot_co_campmgmt_w
If you can only share this post it would be much appreciated.
No comments:
Post a Comment